Tag Archives: healthcare

Queer is not a bad word.

It was a new word for me. Queer. 1967, age eleven, I sought out my twelve-year-old brother, careful to catch him out of earshot of younger siblings. “What’s a queer?” I asked.

Ssshhh!” He flicked his head toward the adjacent bedroom where our mother was putting away laundry. “Mom will hear you.”

His stage whisper so loud, I was certain she heard him, not me. I left, question unanswered.

I had a fallback plan: Julie, our thirteen-year-old neighbor. She would tell me. And she did. I don’t remember her words. Straightforward, they didn’t leave a lasting impression. The shushing did.

I didn’t fault my brother, though. Growing up in the 1960’s, the families I knew didn’t talk about “the birds and the bees.” I added “queers” to the list, and moved on.

Twenty years later, I had my first baby. When I changed Eric’s diaper, I practiced saying “this is your penis” and “this is your scrotum,” determined to say those words as easily as “Head of hair. Forehead bare . . .”

When he was four, I borrowed a kids’ library book to read to him and to one-year-old Colin. It had cartoonish drawings and talked about bodies and making babies, subjects I did not want to be taboo. That same year, Eric traced a panty liner on a piece of paper. He presented his drawing, pride palpable: “I drew a uterus!”

His drawing did look like the knitted uterus I used in my Lamaze classes. I reveled in his artistry, creativity, and in the way the word rolled off his tongue.

Eric and Karen Buley.
Eric and Karen.

Fast forward twenty-five years. I wish I had known to look for LGBTQIA books. That acronym was not in my vocabulary back then, but acceptance, empathy, love, and tolerance were. I have learned that I am an ally. And Eric is queer. He is also a Fulbrighter. A City Year AmeriCorps alum. An Education Pioneer. A TeamChild Board Fellow. And an MPA. A recent graduate of University of Washington, he was nominated to be both a Husky 100 and a Luce Scholar. He is fluent in Spanish; has lived on four continents; and is compassionate, kind, and an inspiration. His sexual orientation does not define him.

On the eve of his seventeenth birthday, Eric left Montana to spend a year in San Miguel de Tucumán, Argentina, as a foreign exchange student. Four days ago, I donned a pair of Argentine earrings he gave me, harnessing his courage as I prepared to embark upon my first solo door-to-door canvassing. His political activism began in high school when he restarted an Amnesty International club for his senior project. My activism, spotty throughout the years, kicked up last summer. In recent weeks, it has been on overdrive.

Montana has a special election coming up May 25. Our lone seat in the House of Representatives was vacated in March. I have been working hard to elect Democrat Rob Quist. He represents Montana values, including equity. His Republican opponent opposed non-discrimination ordinances in Bozeman and Butte. But equity is a Montana value, so both ordinances won easy victories: Bozeman unanimously; Butte 10-2.

At a recent Special Election Action Forum, a speaker shared a conversation she had had with her mother. When she referenced LGBTQ rights, her mom asked, “What does the Q stand for?” then said, “Oh. That’s a word I don’t use.”

Her mom is a Baby Boomer, like me. I didn’t use ‘queer’ growing up, either. I do now.

Last week, while tabling on the University of Montana campus, I talked with another Baby Boomer. He expressed concerns about the candidates. I rattled off Rob Quist’s Montana values: public lands, affordable health care, Medicare and Social Security, public education, Second Amendment Rights. He told me he had been in the healthcare field, so we talked about that.

Then I shared the heart of my story. I told him I had never really campaigned before. I said that Rob Quist believes in equity, and I was fighting for my queer son who cried for two weeks after our November election. The current Republican candidate had fought non-discrimination ordinances, I said. I tried to keep the quiver out of my voice when I added that my fight was to elect a man who believes in equity.

He listened, then said that my son should not have to worry about being treated equitably.  He put his hand on my shoulder, and told me he would vote for Quist “for your son. My wife will, too,” he said.

I thanked him, hoping he realized the depth of my gratitude.

I had another tender conversation when I knocked doors two days later. The man told me he had lost his wife the week before. His words matter of fact, I asked about her. Sixty—my age—she died too young. He told me about her cancer and her medical bills. I told him about my dad, who had passed away three months before, five days after breaking his hip. Eighty-nine, he had a good, long life. We talked about affordable healthcare for all.

I told him I was campaigning because I had a queer son, and because Rob Quist believes in equality.

“Your son is what?” he asked.

“Queer.”

“What does that mean?”

“It’s an umbrella term for non-heterosexual,” I said. I told him it was a reclaimed term, not the slur of our youth.

“I did not know that,” he said, words thoughtful and deliberate.

We talked a bit more about his wife’s upcoming celebration of life before saying goodbye.

When I reached the sidewalk, he called, “Tell your son there are people out there who support him.”

“I will,” I replied, voice catching.

Tears threatened as I walked to the next house. His words affirmed what I knew, and gave me resolve. Montana has a single seat in the House of Representatives. I will continue to fight for Montana’s voice to be one of affirmation, safety, and inclusiveness.

Detours

My appendix ruptured three hundred fifty miles from home. That was not the plan. The plan was to spend two nights with my dear friend Shelly. Catch up. Reminisce. Write her obituary. On the cusp of her fifty-ninth birthday, Shell’s receiving in-home hospice care for a pancreatic neuroendocrine tumor.

Midnight before we said “goodnight,” we spent nine glorious hours looking at photo albums, talking, laughing, and crying. My pain started soon after. I searched “appendicitis”  and “acupressure abdominal pain” on my phone, grateful my pain was low and midline, not the right lower quadrant pain with rebound tenderness I remembered from my nursing school days and February of my boys’ eighth grade years—when appendicitis struck twice.

I worked the acupressure points on my shins and belly to no avail. The vomiting started at two-thirty. Shelly’s daughter Michelle drove me to an urgent care center that morning. “Food poisoning,” the doctor diagnosed. He said my pain wasn’t in the triangular area suspect for appendicitis, but if my symptoms got worse I could return for blood work and a scan. “How does that sound?” he asked.

“Sounds good,” I said.

My cousin Theresa picked me up. I waited in the car while she filled my prescription and bought ginger ale and sports drinks, then I took a dissolvable anti-nausea tablet en route to Shell’s to get my things. A hurried goodbye followed with a promise to return.

Seven hours later I was in the emergency room—at a different facility than that morning. Hours after Theresa delivered me to her home, her twenty-one-year-old son broke his pelvis in a motocross accident. He was in ER with his dad, awaiting admission. Theresa came home to pack an overnight bag and shuttle me to an ER. Made sense to go where she would be spending the night: between ICU, my room, and a waiting room as it turned out.

Ruptured appendix” was the diagnosis twenty-two hours after my pain began. I asked the surgeon if she thought it ruptured when I vomited in the ER waiting room and my pain shot from 7 to 10. To 15, had that been an option on the pain scale. She said appendixes often rupture at the onset in adults. Said too that adults’ pain can start midline and then migrate to the right. My pain was low, not around the navel like I’d read online. She said she’d try to remove my appendix laparoscopically but might have to open me up. I said I hoped she wouldn’t have to.

She didn’t. Rich bused over and drove me home thirty-seven hours after surgery. My drain came out two days later. That night I was again an ER admit, this time with vomiting, chills, and fever. “High-grade bowel obstruction and two pelvic abscesses” were my diagnoses: a ticket to a nasogastric tube, a laparotomy, and a weeklong hospital stay. Four times in five days I had to present my insurance card, grateful at each point for the Affordable Care Act and our insurance plan through Montana’s health insurance exchange.

Sunrise from St. Patrick Hospital room 513. May 2016
Sunrise from St. Patrick Hospital room 513
Mount Jumbo and Mount Sentinel from hospital window
Room with a view: Mount Jumbo and Mount Sentinel from 513

Would my outcome have been different had the urgent care doctor ordered blood work and a scan? Maybe. Had the first surgeon opened me up? Perhaps. “Probably” says my nurse friend Marj. In hindsight, both might have been better options but at the time, I was relieved by each assessment. Throughout my two hospitalizations and recovery periods, thoughts of Shelly—her courage, strength, and grace—put my journey into perspective. My surgeries were detours—the saddest part being I didn’t get to say “goodbye and good luck” to graduating seniors—but they paled compared to Shelly’s pancreatic cancer. To Matt’s broken pelvis. He’s recovering well from trauma surgery, but the abrupt ending to his motocross career was hard.

I know life is unpredictable. And every day’s a gift. So I changed my oil, filled my gas tank, and took another road trip. Shell and I had some writing to do.

Shelly & Karen. August 2016
Shelly & Karen. August 2016